Welcome to another post about our comings and goings. The Staley Family just keeps trucking on. We take our hits, but nothing stops us. We motor along and wait for the next hit. What else is there to do. We can't give up and we don't give up and we won't ever give up.
Madeline is still our little Marfan, but we have way more questions than answers at this time. If you'd like to learn more please head to www.marfan.org. They have so much info. She is in the process of getting braces. A process she is not looking forward to for the next couple of years. She still is our little fish. She amazes me in the water. She just makes it look so effortless. Who knows where it will take her. I hope it takes her where she wants to go...where that is hasn't been decided yet.
Cameron is probably going to be heading to an eye operation in the near future. He has a pretty severe case of double vision that happens very often. We were hoping to fix it with some prisms in his eyewear, but he has to make things difficult by seeing two on the horizontal and vertical plane. That's the breaks. He is very active with school, reading and golf. He may not be very good...probably because his eyesight was much worse than originally thought, but he keeps on trucking.
Paul is busy with the Scouts and work and kids and being mister mom when he is off and I am working. He is an amazing strength and support for me. I could not do what I do without him. Someday he will be recognized on more than just the home front.
I am still the hard working mom who runs and runs and thinks I can do it all on my own without the help of others. I am a work in progress. My Young Women and my kids keep me going every direction, but I probably would not know what to do with myself if I was't going everywhere.
Life is the way it is and I wouldn't have it any other way. Because someday we won't have what we have today... and that is all that matters.